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Jan's avatar

I think maybe there is a step before offering options. What I hate, a woman with a 30-40 year history of working with my diabetes is medical people coming in telling what I am (morbidly obese type 2 diabetic - I weigh around 235). Ask what I have been doing about my health and my diabetes. I am one of the experts in the room.

Then you offer options because if they are already doing what you're offering maybe you can work together with idea of how to move forward.

Thanks for reading my rant.

jen's avatar

Agreeing with the other commenters: I need my providers to ASK what I've been doing before they even come at me with wanting to make suggestions. I have decades of nutrition experience, and a lifetime of debilitating food intolerances (celiac, soy allergy, corn allergy, dairy allergy, and the list goes on quite a bit from here) so anyone telling me to "eat better" had better be asking when they can come over and act as my personal chef in the same breath.

And on the flip side, don't assume that I'm inactive or I don't want to be active just because I'm fat and sitting in a wheelchair. I use the wheelchair to get to my appointments and do boring errands to conserve energy so I can go home and do FUN activities like gardening, pedaling my e-trike, renovating our home, and having sex with my spouse. I'm not wasting my precious energy on performing able-bodiedness for a healthcare provider.

These scripts are good, but I think they should come AFTER touching base with a patient and asking them how they're managing their health and what they're looking for out of the appointment.

Because honestly, even if a provider is prepared with a lengthy lecture about my problematic body, I still don't have to consent to hearing it. I may have already seen my lab results in the patient portal, and by the time the long wait for a follow up has passed, I've already made some changes I'd like to test for the next 6 months (because I'm an informed patient with research experience AND the desire to read way more research about my conditions than my providers ever would), so I have no interest in hearing the boring old reruns of an assumption-laden lecture about my body.

To Mary: I applaud you for being open to learning about the research that your education failed to provide you, and for asking for input to improve the care you offer patients. I admit that you not being "fully on board" with treating higher weight patients the same as thinner patients makes me cringe and hope that you aren't my provider, because I live with complex PTSD and a permanent unfixable spinal cord injury due to doctors' fat stigma interfering with their ability to provide me with evidence-based healthcare. I do hope that you'll read the comments (not just here, but on other relevant posts Ragen's written) and take our experiences to heart.

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