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jen's avatar

These stories are so heartbreaking and so important. Thank you for talking about them.

I think about this a lot. There’s also 20-year-old Allison Fisher with a 104-pound ovarian tumor, because doctors. (How many more of these stories will we hear now that we are obsessed with kids’ fatness?) and Elly Mayday the model who was told she just needed to lose weight and strengthen her core to fix an ovarian tumor doctors couldn’t be bothered to identify.

There’s just so many stories like this, and it’s so frustrating.

I was diagnosed with celiac in my 30’s. I probably had it my whole life starting around age 2, based on my childhood symptoms, but no one considers a fat child might have celiac. Untreated celiac and refractory celiac (where even a gluten-free diet doesn’t prevent intestinal damage) can lead to intestinal lymphoma. I thought I was in the clear once I figured out I had celiac (doctors get no credit for the diagnosis because they actually refused to test me the first two times I requested testing, delaying my diagnosis by years), but I’m still struggling with symptoms despite being militantly gf, and I learned in the past year that I have refractory celiac. I am 100% convinced it wouldn’t have been this bad if I’d been diagnosed sooner. I think even 5 years sooner could’ve made all the difference.

Chris C's avatar

Wow, that is awful. I hope he gets justice and goes on to live a long life.

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